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attackfish ([personal profile] attackfish) wrote2011-07-20 09:30 pm
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Bittercon: A Fate Worse than Death - Narrative Treatment of Permanent Physical Harm

Cinderella's sisters cut off parts of their feet. Rapunzel's prince loses his eyes to a thorn bush. But in present-day fantasy, it seems less shocking to kill a character than to significantly and permanently damage their physical form; witness the thousands of deaths in George R.R. Martin's Song of Ice and Fire series that don't get nearly as much airtime as one character losing a hand. What changed--for storytellers, and for audiences? How does this fit in with our culture's mainstream acceptance of violence alongside an obsession with youth and physical perfection? As medical advances help people survive and thrive after drastic injuries, will there be more stories that explore these topics?

Anybody who has been following my blog probably already knows that I have disabilities, and that the portrayal of disability and the people who have them in media is a special interest of mine. The above burb from the 2011 Readercon convinced me that if nothing else, I had to host this topic for bittercon.

There's this idea in modern Western society that when a person gains a disability, they stop living. They might breathe, and eat, and do the whole cellular division thing, but they don't have a life anymore, and isn't it so sad? Disability is this strange thing in fiction like killing a character, except that everybody still has to deal with them.

This to me is a deep and insulting failure of societal imagination. I was born with my disabilities, and so have never been able-bodied, but I hear from other people with disabilities who used to be able-bodied, that this just isn't so. I hear people talking about how they would rather be dead than be deaf, or blind, or unable to walk, and it's this same attitude that bleeds into fiction and leaves an author unwilling to write a character gaining a disability. If you can't envision yourself with disabilities, how can you write a character with them?

The above blurb mentions the modern beauty culture, but this cultural chord is far older. Not all that long ago, physically disabled men and women were considered unmarriageable, worthless romantically, and doomed to half-life. Compared to books like What Katy Did and The Secret Garden, modern absence of disability could even be called an improvement. This doesn't mean it's good enough. The above blurb also mentions the modern American acceptance of violence, but I think the unwillingness to deal with disability is part of what marks this same culture's unwillingness to deal with the true consequences of violence.

I've written previously about how many people see disability as getting in the way of a happy ending. I disagree with this (vehemently and loudly) but it is true that having someone around who has acquired a disability is having a living, breathing reminder that Bad Things Have Happened, in a way that a dead body obviously isn't. I'm not of the opinion that this is a bad thing, but it can be a hard one.

Not all is doom and gloom for people with disabilities in modern fantasy, however. There are some absolutely amazing books with disabled characters. Yes, I'm going to mention Megan Whalen Turner's Queen's Thief series, where the main character loses his had at the beginning of the the second book, and has to face his own prejudices and feelings of inadequacy as well as the purely practical adjustments, but there are others, Sarah Rees Brennan's The Demon's Lexicon and sequels, where one of the central characters has a severe limp, and a backstory as an athlete, whose brother wants to cure him against his will. The fifth Harry Potter movie portrays Harry showing symptoms of PTSD.

Aside from discussion, I would love it if you reading this would help ad to the above list and mention fantasy you love with decent portrayals of disabled characters, and yes, as my Harry Potter reference indicates, that includes mental and neurological disabilities, as well as the physical ones this topic is technically about.

Written for [livejournal.com profile] bittercon the online convention for those of us who can't make it to any other kind, on a topic stolen from a panel at the 2011 Readercon.

[identity profile] danceswithwaves.livejournal.com 2011-07-21 04:14 am (UTC)(link)
Well, I'm reading Dies the Fire by S M Stirling right now, and it necessarily deals with PTSD and similar mental reactions to seeing your world fall apart and having to kill people. But your post especially reminded me of a side character we just met who had his foot cut off because he was captured by cannibals. When the main characters find him they're like, "oh my god, you're a doctor! you better not die on us! we need you!" They're not like "oh my god, you had your foot cut off!" Because the doctor part is waaaay more important than his foot.

[identity profile] attackfish.livejournal.com 2011-07-21 04:19 am (UTC)(link)
*reads summary of the plot on Amazon* Oh my God, I need this book. The foot thing just clinches it.

[identity profile] danceswithwaves.livejournal.com 2011-07-22 04:15 am (UTC)(link)
Just so you know, it's a series (so when you get hooked into reading the whole thing...I guess you can come back and blame me...). There are sample chapters up on SM Stirling's website, too.

Also, I didn't think to mention, one of the secondary characters, the daughter of one of the main characters, is deaf. I probably forgot to mention it because it's such not a big deal -- they just speak in Sign (and then the little kids start learning Sign because she's the only teenager around so it's Really Cool to learn).

[identity profile] danceswithwaves.livejournal.com 2011-07-22 04:20 am (UTC)(link)
I'm not sure if I was clear. I meant the mother and daughter speak to each other in Sign and then other people start learning it because of the close community that gets built in the book, and the little kids especially like learning Sign because it's Cool.

[identity profile] attackfish.livejournal.com 2011-07-22 04:49 pm (UTC)(link)
I read tons. Nothing wrong with getting me hooked on a series.

We had something like that happen where I'm from. The prettiest girl in my brother's school was blind, so all the boys learned to read braille to pass notes to her.

(*goes off to check out sample chapters*)

[identity profile] danceswithwaves.livejournal.com 2011-07-22 10:58 pm (UTC)(link)
Um, I guess my tone didn't come through, sorry about that. I have picked up on the fact that you read a lot -- my comment was the type of thing I'd say teasingly to my friends in person, and we all devour books too.

[identity profile] attackfish.livejournal.com 2011-07-22 11:04 pm (UTC)(link)
Nah, it came though, I was teasing right back. Sadly, tone of voice doesn't come through online!!!!!

[identity profile] attackfish.livejournal.com 2011-07-23 02:55 am (UTC)(link)
lol
marycatelli: (Default)

[personal profile] marycatelli 2011-07-21 04:22 am (UTC)(link)
It's quite scarey, the modern attitude toward disabilities. Prosecutors have not charged people who committed cold-blooded murders of their disabled relatives -- partly because they could not get a conviction.

[identity profile] attackfish.livejournal.com 2011-07-21 04:30 am (UTC)(link)
Oh I know. And the media accounts tend to ooze sympathy. And every time a case of a person with disabilities, even a child, being abused comes out, all the media can talk about is how hard the child was to deal with, and oh, the poor abusive caretakers! *Shakes head* Meanwhile, if you have a kid with disabilities and you're a good parent, odds are, the town will be talking about how it's all your fault your kid is disabled. And if you're a parent with disabilities, oh, well, you aren't fit, are you.

[identity profile] jade-mushroom.livejournal.com 2011-07-21 10:49 am (UTC)(link)
This is a fascinating topic, and I wish you all the best on this. However, mind if I throw a smallish wench? I sometimes wonder if this is more of a Western phenomena than anything else. Not that we here in Asia don't find disabilities horrifying, but we treat and view our disabled very differently.

Hear me out: something that has always happened when I bring friends around Taiwan, is that they always remark that there are "a ton" of people in wheelchairs, blind people, very old people, mentally handicapped, disfigured people [missing limbs, or obvious scars], and otherwise disabled. Although, yes, some of these people are begging, majority of them are not. They're storekeepers, people rushing to work/school/play, and everyday folks.

The majority of publicly accessible are wheelchair accessible, and the sidewalks in Taiwan and China [I use these as examples since I've lived here] are marked by special tiles for the blind. I dont believe we necessarily have 'more' disabled people [though it is possible], but I believe that the Chinese don't treat them as unable to work and contribute to society. Everyone has a place, and there are trades [though I wonder about these sometimes] for them as well. I can't read Chinese so I can't tell you what goes on in literature, but watching tv shows and movies, handicapped people do come up quite often. Of course... being Chinese and you know how we're all into martial arts films.... Toph Beifong is not an anomaly in our media hahaha

[identity profile] attackfish.livejournal.com 2011-07-21 01:36 pm (UTC)(link)
I mentioned it was a modern Western thing in the article.

In the West, people with disabilities are deliberately hidden away, and when we don't comply, we're seen as malingerers. It may be that there are more people with disabilities in China and Taiwan, or it may just be that Chinese society is less desperate to keep them hidden. Part of this is the Western obsession with individuality, where people who succeed are seen as succeeding on their own, and if you don't succeed (according to a fairly rigid model of success that very few people with disabilities can even come close to, and not without help) it's your own fault, and you're a bad person. I'm told Chinese society is more aware that nobody makes it on their own, correct me if I'm off base here.

One of these days, I'm going to write up my feelings about disability and superpower and how much this trope sets my teeth on edge. Most of my examples would be Western, as that's most of my media experience, but...

[identity profile] jade-mushroom.livejournal.com 2011-07-22 01:03 am (UTC)(link)
sorry, my eyes most have rolled over that bit without absorbing it.

And yes, Asian society focuses on the strength of the community, since no man is an island. We like to think that everyone can get ahead on their own merit [Chinese society was the first recorded civilization to have meritocracy; government based on merit. Other than the Imperial family, people had to pass examinations before they could attain government positions.], but in RL, people have advantages and disadvantages.

This is even more apparent in Taiwan, being made up, as it is, of a huge amount of people who were refugees from China from the civil war, and the Cultural Revolution. And our refugees were predominantly involved in government, business, and were high education and very wealthy back in China. Most of them had nothing when they arrived here, so the government was set up to remove barriers and take care of necessities. It still is to this day, with Taiwan having a very strong social welfare system that truly takes care of its young, old, poor, infirm, and disabled.

[identity profile] attackfish.livejournal.com 2011-07-22 04:46 pm (UTC)(link)
In the US, though not I hear the rest of the Western world nearly as much, we have this ideological thread called "rugged individualism" the catch phrase for which is "personal responsibility". Rugged individualism presupposes that we live in an absolute meritocracy, and anybody who works hard enough can get ahead. It's no coincidence that it is most often espoused by people who worked hard and got ahead, and because things were difficult for them, they don't realize that they might be much more difficult for someone else who has a different set of challenges to face. They don't see why they should help someone else (outside of family) in any way at all. This ideological thread is what the Tea Party is built on. The personal responsibility part is how they justify to themselves not helping anybody. It's not my fault your kid was born with a brain tumor, in other words, it's your fault for having a kid you couldn't afford to take care of if he got cancer. The fact that I have three kids, and if one of them got cancer, I have no idea how I would pay for them isn't relevant to this discussion, for some reason.

The meritocratic system in Imperial China was supported by a class of bureaucrats who could afford to send their children to Confucian schools, or hire tutors, or had the knowledge to teach their children themselves. Rugged individualism would be if those successful bureaucrats blamed a peasant who had never had the opportunity to get an education for not becoming a governor. It would be as if those refugees in Taiwan decided once they got on their own feet that if they could do it, then anybody should be able to, and why should they or the government lift a finger? It's a strange, hypocritical ideology used to justify collective selfishness, and goes far beyond believing in a meritocracy. Basically, this ideology says that all men actually are islands.

Sorry for the lecture. I noticed looking through your post you've taken poli sci courses (and if it's your major, you will thrill me to bits) and I thought it might interest you to hear what we US political scientists are studying. And banging our heads against.

[identity profile] jade-mushroom.livejournal.com 2011-07-23 03:31 am (UTC)(link)
Hahaha. I totally see and agree with what you're saying. The idea of the Confucian meritocracy was a good idea, but it didn't translate into RL as well, simply because most of the peasantry didn't have the leisure time to do something such as study. Yes the nobility would still take those positions, because they were better fed and better read. But supposedly someone who wasn't nobility [usually merchant class] could still get ahead based on this system.

and yes I'm a political science major, with a focus on social movements and public policy. Especially if it's plastered with pink and rainbows [gay rights and women's rights activism]. Feel free to love me now.

Oh! And I am American... I'm just also a child of immigrants [Taiwanese] who were the children of refugees [Grandparents from China], who were descended from nobility. After the revolution, my grandparents arrived in Taiwan with nothing. With help from the gov to get food and shelter, they worked hard adn eventually would start up the largest lightbulb factory in taiwan [at the time]. So I've got "nobility", completely abject poverty, and "pull yourself up by your bootstraps" in my blood in just 4 generations. I am also a TCK [Third Culture Kid], my family has and still is stationed in Shanghai China, where I went to an international school. It gives me a different perspective on this kind of stuff.

[identity profile] attackfish.livejournal.com 2011-07-23 04:42 am (UTC)(link)
As far as I've been able to tell, the testing system was pretty good at rooting out incompetent civil servants without opening up the jobs to the peasant classes. Basically it did what it was designed to do. Baby steps.

Gay rights, women's rights, and disability rights here, with a side job calling out anti-Semitism. I focused more on international relations, to complement my Russian and Arabic language skills, though.

There I go making assumptions, sorry about assuming you weren't. I know how annoying it is. People assume I'm not American, because I have a strong Dutchy (Pennsylvania Dutch, a dialect of low German) accent. I keep getting told how good my English is.

Oh I bet! My family got very wealthy during the gold rush bilking miners, then my great great grandfather lost it when he discovered a way to manufacture dry ice (no seriously!) and his patent lawyer stole the patent and then sued him for all he was worth. Things like that happened over and over again, and our ping ponging fortunes became a family joke, though we were never nobility. My strange outlook on life however comes from the fact that for some reason, people in my family keep marrying the children of Nazis and raging anti-Semites. For a nice Jewish girl, it's kind of disturbing how many of them I can point out in my family tree.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)

[personal profile] redbird 2011-07-21 11:28 am (UTC)(link)
From quite a few years ago: Elizabeth Lynn's The Dancers of Arun has a one-armed protagonist; he lost the other arm when he was very young. We see both practical disadvantages, and the ways that different people treat him because of the physical disability. But that isn't the only, or main, thing the story is about: it's a coming-of-age story, with an arc of leaving home and finding people and trying to decide what he wants to do, once he sees that he has choices.

[identity profile] attackfish.livejournal.com 2011-07-21 01:43 pm (UTC)(link)
*adds it to list* One of the things I've noticed about all my favorite books with a disabled character is that it's a side aspect to a story about something else, a reminder that people with disabilities aren't defined by this little bit of ourselves.
Edited 2011-07-21 13:44 (UTC)

[identity profile] muuranker.livejournal.com 2011-07-21 02:26 pm (UTC)(link)
One of the things I dislike about portrayal of disability in fiction (of all kinds) is that many disabilities involve significant pain.

One that does is Jo Walton's Among Others.

[identity profile] attackfish.livejournal.com 2011-07-21 02:40 pm (UTC)(link)
But sometimes this is so. If you portrayed my circulatory disease without the pain, I'd cry foul.

Unless you mean that most portrayals either linger on it or ignore it. Your comment's unclear to me as to what you're getting at.

[identity profile] muuranker.livejournal.com 2011-07-21 03:02 pm (UTC)(link)
Sorry - I should have said:

One of the things I dislike about portrayal of disability in fiction (of all kinds) is that many disabilities involve significant pain, and this is ignored by almost all writers.

[identity profile] attackfish.livejournal.com 2011-07-21 03:52 pm (UTC)(link)
Yes, this drives me nuts. And when it is touched on, it becomes the point of the story instead. Part of what I liked about Queen's Thief was that Gen had phantom limb pain and blisters from his hook cuff on a regular basis, but usually...
Edited 2011-07-21 15:53 (UTC)

[identity profile] ejmam.livejournal.com 2011-07-22 04:15 pm (UTC)(link)
Sarah Monette's series about Felix and Mildmay has Felix go insane in the first book (by a spell, which gets lifted by the next book) and Mildmay becomes crippled. A major arc for Mildmay is coming to terms with his physical limitations, especially since all his career training relied on his strength and agility. He still finds, well, nobody find happiness, but he's left with hope.

[identity profile] attackfish.livejournal.com 2011-07-22 05:21 pm (UTC)(link)
I've avoided reading Sarah Monette's work because of her bad behavior during racefail09, and this comment does not incline me to pick up her books at all for one reason: the fact that Felix goes insane (or develops a mental illness in other words) and is then cured. Given the magical nature and the subsequent cure, I doubt it's well handled.

On a side note, the words "crippled" and "cripple" are derogatory and hurtful to people within the disabled community, and carry with them connotations of uselessness and pitiability. Really really really don't use it.

[personal profile] chordatesrock 2013-05-05 08:42 pm (UTC)(link)
The prince from Rapunzel was magically and inexplicably cured, though.