attackfish: Yshre girl wearing a kippah, text "Attackfish" (Default)
[personal profile] attackfish
Writing my current chapterfic, Children of Mars, is becoming a didactic exercise.  The writing itself is as much a pleasure as ever, and has even gained a sense of catharsis, but when it comes time to post, I want to just save it to my computer and never let one more idiot reader anywhere near it.  Now I know not all of you dear readers are idiots, and one of the things I like best about writing fanfiction is the social framework and critique of fandom (yeah, I write for the comments, such a bad girl) and I have never felt this way about posting a fic before.  Before I have always written about able-bodied characters.

My writing Snape with a disability along with werewolfism is part protest at the way characters with disabilities were portrayed in the books I read as a child and part personal expression of myself as a writer with disabilities.  We don’t have the same disability, in the story Snape uses crutches, whereas I’m oxygen dependent and have an immune disease, but we share a certain status as people with disabilities, or (good God) disabled people.  It’s wonderful, and freeing, and it makes me feel so much better after bad days.

But once I post, it seems like so many of the reviews I receive are “teachable moments” and that’s not so wonderful.

Some of you have been saying you can’t wrap your heads around Snape as disabled.  That isn’t because of anything inherent in either Snape as a character or disability, but in cultural narratives that paint people with disabilities as either weak, or more insidiously as plucky, happy symbols of Good, like the damsel in distress in action movies, not a character so much as an object.  Snape will never be a tragic, passive, stoic cripple (a word that I see a lot in reviews and makes me throw up a little in my mouth each time).  He will never be helpless.  He is and always will be a snarky git.  So many of the reviews talk about how horrible all of the other characters are to him.  Well, he’s horrible to them.  Besides which if anyone, even Lily, especially Lily, were suddenly to treat him like a helpless incompetent child who can’t protect himself or do a thing on his own, he would hex them all into oblivion.  When people do that to me, I wish I could.

When I was a kid, books about people with disabilities seemed to end one of two ways.  Either the pure, good, tragic cripple died, or the pure, good, tragic cripple was cured.  Okay, there were also villains whose disabilities were a symbolic sign of their inner corruption, but I’m not even going to touch that one.  Such endings are incredibly disheartening for me, growing up, because I didn’t want to die, and I was never going to be miraculously cured.  I had to carve out a happy ending of my own that included my disability.   For those of you who keep saying you want Snape’s leg repaired at the end, you are tapping into that same disenfranchising cultural narrative.  Stop it.  Stop it now.  Don’t make me get out my squirt bottle of wrathful smiting.  Whatever ending I write (and I will spoil this, if nothing else) Snape and his disability will be around at the end, along with their happy ending.

One thing I didn’t mention about the perfect tragic cripple trope is that they are always portrayed as lacking any sort of sexuality at all.  They neither have sexual feelings or are appropriate objects of desire for other characters.  What. The. Hell.  Okay, okay, there is one type of character with disabilities allowed to lust, the disabled villain.  Of course their sexuality is always portrayed as deviant, and threatening, and further sign of their evil.  Now, no one has sent me a comment with this bit of fail in it, as Snape hasn’t done any more than engage in some canon unrequited Lily love, but I’m waiting,  When the situation calls for them, I’ll get these too.  I have no doubt.

All of this makes me feel even more queasy as I write this, and I get no catharsis or enjoyment from it.  It shouldn’t be my job, but because I will continue writing characters with disabilities, not just in fic but in original works as well, I have put myself in the position of teaching by example, so for my own peace of mind, I must also teach directly.  I’m sure those characters will get similar sorts of reviews, sometimes, if I’m lucky, from reviewers and writers I respect.  When I send my stories out into the world, the knowledge that people will read my characters differently because of their disabilities will always be there.

Snape is not tragic.  He is not a poor crippled boy to be protected and treated nicely by the noble heroes.  He is the hero.  He will fight against and work with his disability, but ultimately, he will do it on his own, like all of us must do at the end of the day.

I’m sure I didn’t cover everything in this post, and a lot of you will be rolling your eyes going “yes, we know all this” and  this is really basic realize people with disabilities are people stuff, but I keep getting comments where I have to reiterate this.  All of you dear readers who do know all this, thank you, and no fear all, I’m still writing Children of Mars and other fanfics.
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Date: 2009-09-09 06:08 am (UTC)
From: [identity profile] konekochan-desu.livejournal.com
Bravo, I say again. I hope everyone who reads Children of Mars reads this as well.

Date: 2009-09-09 08:18 pm (UTC)
From: [identity profile] mojave-wolf.livejournal.com
I haven't actually been reading your fanfic novel (I'm sorry! I tend not to read fanfic at all unless it is both by a friend and short and porn-y, tho this post actually has dramatically increased my chances of reading yours even tho it seems to be none of those things; i actually really like the idea of a powerful hero w/mobility issues), buta couple of thoughts.

First, re: sex & disabilities -- I immediately thought of the movie "Monkey Shines". That is the only case I know where someone who had no use of their legs (or no legs? cant remember) had sex in a movie.The protagonist, not a villain. It's a horror movie/thriller. I can't remember the ending, so I dunno if the dude was cured or not. But might be worth a look.

And totally w/you on people w/disabilities being entitled to the same treatment as everyone else. The best fictional example of this I can think of is Prof X from the X-Men, and we know he had romantic liaisons, even if we never got to see them, and Barbara Gordon (once Batgirl, now paralyzed from waist down, apparently can still fight, at least well enough to take out three wanna be muggers, if not probably at the point where she wants to go hand to hand w/Killer Croc or somesuch). Dunno if you read comics, tho?

Anyway, now I might actually have to go back and try reading your fanfic novel. If I end up doing this, I shall hate you.

Date: 2009-09-13 08:12 pm (UTC)
From: [identity profile] ontogenesis.livejournal.com
One thing I didn’t mention about the perfect tragic cripple trope is that they are always portrayed as lacking any sort of sexuality at all.

Ever watch the American TV show House? The lead character is pure sex-on-a-cane (see my icon). Dr. House takes joy in a being a complete and utter ass, although he's portrayed as a complex character. The show also plays with the themes of "pity" and "compassion" and how it can be quite unwanted. (One of my favorite scenes is when House's best friend -- who is usually far too lenient with House -- gets back at him by sabotaging his cane. And House is very pleased.)

Date: 2009-09-13 08:41 pm (UTC)
From: [identity profile] lydia-golis.livejournal.com
I need to read your fic. I just do, and I'm thrilled that it's in a fandom I know. A thousand "yes"es to everything in this post.

We as people with disabilities need to remind ourselves that we don't have to be anyone's inspiration or teachable moment or exhibit A against ablism or whatever unless we choose to. There is no obligation!

Date: 2009-09-13 09:22 pm (UTC)
From: [identity profile] lady-ganesh.livejournal.com
Here from [livejournal.com profile] metafandom. Ugh, I am so sorry about the bullshit you get in comments. People actually use the word 'cripple' in reviews? Of course they do, why expect anything less offensive?

One thing you might like, if you are looking for more positive betrayals of disability, is the Japanese manga Fullmetal Alchemist. There are some utterly awesome disabled characters, and while they have Tragic Backstories a bit too often, they have lives and capabilities and sexuality. Might be worth checking out.

Date: 2009-09-13 09:43 pm (UTC)
ext_110: A field and low mountain of the Porcupine Hills, Alberta. (Default)
From: [identity profile] goldjadeocean.livejournal.com
Here from [livejournal.com profile] metafandom. Thank you for saying this, and writing a disabled character honestly. It's an awesome rant, and I know trying to deal with people who just don't get it is really frustrating.

Date: 2009-09-13 10:22 pm (UTC)
From: [identity profile] eumelia.livejournal.com
Here from [livejournal.com profile] metafandom
Thanks for this.

You should really check out House. My icon is for illustration only, people dehumanizing other people when it comes to people with disabilities and/or disabled people, just proves how narrow minded we are as a culture when it comes to the body.

Date: 2009-09-13 10:27 pm (UTC)
jesse_the_k: text: Be kinder than need be: everyone is fighting some kind of battle (insane smarty)
From: [personal profile] jesse_the_k
Also here from metafandom. Thank you for ranting--and even more for writing.

Date: 2009-09-13 11:46 pm (UTC)
From: [identity profile] sasha-feather.livejournal.com
Thanks for this post! Well said.

Date: 2009-09-13 11:55 pm (UTC)
ext_3178: a penguin (misc - wolf)
From: [identity profile] penguin-attie.livejournal.com
Ooh now I need to go read this fic. It'll make a change from playing The Sims 3 for the last two weeks straight and its perfect world where at worst you'll get a cough, you can't have two lovers at the same time, and career advances only depend on how hard you work. I want a wheelchair mod!

</rant>

Date: 2009-09-14 01:17 am (UTC)
alias_sqbr: Me on a couch asleep with a cat sitting on my lap top, with the caption out of spoons error (spoons)
From: [personal profile] alias_sqbr
Oh, thankyou for writing this. I was just pondering these issues today: one of my protagonists is chronically ill, and I'm trying to figure out how to have her take charge of her life more (mostly for reasons unrelated to health) and have SOME improvement in her condition without it being "And then she got a positive attitude and got better and lived happily ever after, the end!". It doesn't help that I've only been really debilitatingly ill for a year and a bit so am still working through a lot of internalised unchallenged ableist attitudes myself. But yes, while I haven't got any negative feedback on the illness-related parts of my fic yet, I do wonder how people will react at the end when she (spoilers!) neither gets (significantly) better nor dies.

A fic I read which I felt did a good job of not falling into any of these traps is Finding Himself, a HP AU where Cedric doesn't die but is disabled by the confrontation with Voldemort (and then saves the day! And finds love! And has a cool pet raccoon!...and is maybe a teeny bit of a Gary Stu :) But he doesn't get better!)

Date: 2009-09-14 02:55 am (UTC)
From: [identity profile] strikesoftly.livejournal.com
Yes. Thank you.

(Here from metafandom, by the way.)

Date: 2009-09-14 03:07 am (UTC)
From: [identity profile] blackjackrocket.livejournal.com
I have sort of an odd situation with an original story. There's three kids who're taken into the military (it's a fantasy setting), and the one who's disabled winds up not being used in battle at all (she's also resistant to the leader's spells due to spoileriffic reasons so yeah). So she remains upbeat and confident, only transiently due to her disability. It's moreover because she's not broken by the battlefield. But I'm worried that people will see it like that.

Maybe "upbeat" is the wrong word to use. Her friends wind up almost giving up entirely, and she doesn't, if that clarifies it.

Date: 2009-09-14 04:44 am (UTC)
From: [identity profile] starlady38.livejournal.com
Thank you for this post (I too am here from [livejournal.com profile] metafandom). I shall have to check out your fic; do you mind if I friend you?

P.S. I'd second the recommendation of Fullmetal Alchemist, but the manga, not the anime.

Date: 2009-09-14 05:01 am (UTC)
From: [identity profile] angel-kathryn.livejournal.com
Here from metafandom.

Thank you for saying this. Thank you. This is really important and I hope lots of people read it and don't forget it.

Here from metafandom

Date: 2009-09-14 08:57 pm (UTC)
yourlibrarian: Angel and Lindsey (Default)
From: [personal profile] yourlibrarian
I had to carve out a happy ending of my own that included my disability. For those of you who keep saying you want Snape’s leg repaired at the end, you are tapping into that same disenfranchising cultural narrative. Stop it. Stop it now.

I'm really relieved to hear someone say this. I don't have a disability, but one thing that has always bothered me about reading stories that feature characters developing one is that they nearly always are somehow cured at the end. Even though, realistically, the various affected characters will integrate that experience and it will continue to affect them in the future, it comes across as if the writer is wiping away the character who had the disability in the first place. This is probably because the stories tend to end at that point. You don't see them going on with that experience in their backgrounds, much less going on with the disability in the first place. I find that frustrating.

Date: 2009-09-15 03:31 am (UTC)
From: [identity profile] troubleinchina.livejournal.com
*hands you all the internets, ever*

Lord, I am so tired of the plucky cured (or ignored) person with a disability in stories. A wheelchair is not a tragedy, for crying out loud.

I'm getting a t-shirt that says "Disability is no barrier to sex" and wearing it whenever I'm out with my husband. He's a full-time wheelchair user. Even though we're disgustingly couple-y in public, people still assume I'm his caretaker - even after knowing us for months or even years. Because why else would I be hanging out with someone in a wheelchair?

I was watching Joan of Arcadia (I had to stop), and it looked like it was doing good things in terms of HEA endings for Kevin, who became a full-time wheelchair user after a car accident. Should you wish to look up an older show.

[I'm not a big fan of Professor X as an example of a person with a disability in a story, because his wheelchair floats. I've never read or seen anything that shows his disability actually seriously affecting his life, and it's implied at one point that he's only in the wheelchair because his psychic powers keep him there, and that his powers are "payment" for his disability. YMMV, of course. But we'll never see the damned floating wheelchair keeping him out of a doctor's office because the bloody hospital isn't wheelchair accessible. Not that I'm bitter.]

Date: 2009-09-15 04:08 pm (UTC)
ext_36408: (disability pirate)
From: [identity profile] fizzyblogic.livejournal.com
Here from [livejournal.com profile] metafandom and yes yes YES.

Date: 2009-09-16 09:27 am (UTC)
From: (Anonymous)
Last time this came up over at the Six Apart Place (here via Metafandom, btw) I wrote this in response, about writing a character with a disability.

(No one seemed interested then, and probably no one will be interested now.)

http://janecarnall.insanejournal.com/90636.html

Date: 2009-09-17 06:34 pm (UTC)
From: [identity profile] mary-pseud.livejournal.com
Here via [livejournal.com profile] metafandom

I'm having trouble wrapping my head around people thinking that Snape must somehow turn into an entirely different person because he has a walking handicap. I'd picture him as just as snarky with crutches, with the bonus of always having something heavy on hand to thwack people with.

And on a personal-opinion note, I wrote a series of fanfics in which a character who was (canonically) severely physically handicapped ended up being repaired. Was this an offensive concept right from the get-go? Should I not have done that?

Date: 2009-09-18 08:01 pm (UTC)
From: [identity profile] reconditarmonia.livejournal.com
Here via [livejournal.com profile] metafandom - your post reminds me of a comment in Terry Pratchett's Jingo, the exact phrasing of which I can't remember, but the gist of which was "Real equality is letting the other guy be a bastard, too." It's not anti-ablism if people with disabilities can't be fully developed characters like everyone else.

Date: 2009-10-13 02:20 pm (UTC)
From: [identity profile] gement.livejournal.com
Bravi, bravi, bravisimi. (Here from kaizoku. Amen, and thanks for reminding me to consider disabilities in my own work.)

Date: 2009-10-16 08:14 am (UTC)
ext_134: by ladyjax (Default)
From: [identity profile] ladyjax.livejournal.com
I came this way via friends of friends (or something like that). Thank you very much for your insightful post. It reminded me of those times when I need to shut up and listen just as I expect people to shut up and listen when I lay something out about race.

Date: 2009-10-22 12:08 pm (UTC)
From: [identity profile] coldneedles.livejournal.com
Thank you for this. It needed to be said and you did so brilliantly, although it should go without saying.

I'm chronically ill and coming to identify as disabled and I've been very frustrated at the portrayl of disability in fandom. I read things with disabled characters because the world assumes that everyone is ablebodied/neurotypical and for once I want to see someone vaguely like me represented.

But I keep running into terrible stories and people in the comments are all amazing! inspiring! tragic! and I'm left thinking, well that's like my life and I didn't find that story inspirational, it just made me feel bad about myself. And then I wonder if I've got the spoons to deal with criticising someone's ableist masterpiece and probably getting a load of abuse back.

(If you're interested what's currently makng me wince is this story: http://www.fanfiction.net/s/4342893/1/A_Dimly_Lit_Summer)
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